United Spinal Association Recruiting Focus Group Participants with Spina Bifida or Spinal Cord Injury Who Experience Urinary Symptoms

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Dec 11, 2014, 09:10 ET

NEW YORK, Dec. 11, 2014 /PRNewswire-USNewswire/ -- United Spinal Association is working with Medstar National Rehabilitation Hospital and Children's National Medical Center to learn more about the experiences of people living with neurogenic bladder––or the loss of normal bladder function––who use intermittent catheterization.

Persons who perform intermittent catheterization and who have spinal cord injury or spina bifida, or who are parents or caregivers of such individuals, will share their experiences in 1-hour focus groups, which will take place entirely online and by phone during December, 2014 and January, 2015.

Those interested should contact Ceylan Hasan at 202-877-1591 or email [email protected].

Participant information will be kept strictly confidential and will be used to develop a urinary symptom self-management protocol to help people with neurogenic bladder.

Neurogenic bladder is caused by brain, spinal cord or nerve conditions or disorders that may result in the bladder becoming overactive or underactive, and can secondarily impact the kidneys as well.

By comparing the information that participants share in the focus groups, researchers hope to get a better understanding of how and what urinary symptoms are experienced so that interventions may be developed to reduce symptoms.

About United Spinal Association
United Spinal is a national 501(c) (3) nonprofit membership organization formed in 1946 by paralyzed veterans and is dedicated to improving the quality of life for all Americans with spinal cord injuries and disorders (SCI/D), including multiple sclerosis, spina bifida, ALS and post-polio. It played a significant role in writing the Americans with Disabilities Act, and made important contributions to the Fair Housing Amendments Act and the Air Carrier Access Act. Membership is free and is open to all individuals with SCI/D. United Spinal was instrumental in getting New York City to create sidewalk curb ramps and accessible public transportation that has been used as a model for many United States cities.

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SOURCE United Spinal Association