SILVER SPRING, Md., March 13, 2015 /PRNewswire-USNewswire/ -- The Tuberous Sclerosis Alliance (TS Alliance) will honor Helena Foulkes, President, CVS/pharmacy and Executive Vice President, CVS Health, at the organization's 14th Annual Comedy for a Cure® on April 12 at the Globe Theater in Universal City, CA. Over the past 13 years, this event has raised nearly $4 million to support TS Alliance research efforts and support programs for people with tuberous sclerosis complex (TSC).
CVS Health first got involved in Comedy for a Cure in 2005 and has continued to support the event through generous sponsorships. "Helena has served on the honorary committee of Comedy for a Cure since 2012 and has been instrumental in TS Alliance government advocacy efforts by garnering Congressional support for the appropriation for TSC research in the Congressionally Directed Medical Research Program budget," said Kari Luther Rosbeck, TS Alliance President & CEO.
In addition, since FDA approval of Sabril® (vigabatrin) in 2009, CVS Health has served as one of four specialty pharmacies that distribute the medication based on very strict safety requirements. "Under Helena's leadership, CVS Health has gone above and beyond to ensure the needs of children and adults with TSC are met through timely medication delivery and by working tirelessly with the TSC community and insurance companies to mediate any issues with coverage," Rosbeck continued.
TSC is a multi-system genetic disorder that causes tumors to form in vital organs, primarily the brain, heart, eyes, kidneys, lungs and skin. It's also the leading genetic cause of both autism and epilepsy. Approximately 50,000 people in the United States suffer from the disease, and it has an estimated incidence of 1 in 6,000 live births. More than 1 million people worldwide have TSC.
Formed in 1974, the TS Alliance is the only U.S.-based non-profit organization dedicated to finding a cure for TSC while improving the lives of those affected. For more information about Comedy for a Cure, visit www.ComedyforaCure.org. For inquiries about TSC or the TS Alliance, visit www.tsalliance.org.
For more information contact:
Dee Triemer, Director of Special Events & Corporate Partnerships
(301) 562-9890, [email protected]
Logo - http://photos.prnewswire.com/prnh/20150313/181579LOGO
SOURCE Tuberous Sclerosis Alliance
Related Links
WANT YOUR COMPANY'S NEWS FEATURED ON PRNEWSWIRE.COM?
Newsrooms &
Influencers
Digital Media
Outlets
Journalists
Opted In
Share this article